Patient Organisations

National patient organisation for people with any type of parathyroid condition

Addison’s Disease Self Help Group 
The ADSHG is the UK support group for men, women and children diagnosed with Addison’s Disease (or adrenal insufficiency).

AMEND, the Association for Multiple Endocrine Neoplasia Disorders, is a UK registered charity supporting patients with Multiple Endocrine Neoplasia and associated growths, their families and friends. Tel: 01892 516076

Association Vivre Sans Thyroide
Forum for French patients living without a thyroid

British Thyroid Foundation
A patient led association for those with thyroid disorders.

Butterfly Thyroid Cancer Trust
Butterfly Thyroid Cancer Trust is dedicated solely to the support of people affected by Thyroid Cancer in the UK. Helpline 01207 545469.

CancerHelp UK 
The patient information website of Cancer Research UK.

CLIMB – Children Living With Metabolic Diseases
UK umbrella group providing information and support for parents, carers, professionals and patient support groups.

Contact A Family
Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children – no matter what their disability or health condition.

Crohn’s and Colitis UK
Calcium absorption problems? Crohn’s and Colitis UK aims to improve life for everyone affected by Inflammatory Bowel Disease (IBD), the most common forms being Crohn’s Disease and Ulcerative Colitis.

European Thyroid Association
Aims to promote and improve knowledge of the thyroid field.

Genetic Alliance UK
A national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders. HPTH UK is a member.

Managing Long Term Conditions
A  forum for all those involved with people living with long term conditions

Max Appeal – for children with DiGeorge syndrome,VCFS and 22q11.2 deletion
Charity website run by parents for parents

The Royal Osteoporosis Society 
The National Osteoporosis Society is the only national charity dedicated to improving the prevention, diagnosis, and treatment of this fragile bone disease for women and men. Helpline 0845 450 0230 or 01761 472721

NET Patient Foundation
Information and advice to those affected by neuroendocrine cancer

Patient UK
A directory of UK health, disease, illness and related medical websites that provide patient information. HPTH UK have co – authored the pages on Hypoprathyroidism and Hyperparathyroidism.

Rare Disease UK
The national alliance for people with rare disease and all who support them.