Scottish member Natalie Love climbs Ben Lomond for HPTH UK.
HPTH UK recieve a grant from the Society for Endocrinology towards the printing and distribution costs of the Patient Information Leaflet.
BES 2008 - Manchester
First International Thyroid cancer audit takes place
Hypopara UK publishes the first ever patient leaflet on Hypopara
28th Feb 2010 - see UK events
This year we are launching our new website to mark our Awareness Day - we hope you like it! Please help us to raise awareness about Hypoparathyroidism by sending the link to others (like your doctor maybe?) and asking them to do the same ... and so on...
New service improves treatment for thyroid cancer patients
HPTH UK will be attending the second annual Rare Disease Day to be celebrated on 25 February 2009 in countries throughout Europe. In the UK, Rare Disease UK in collaboration with the Genetic Interest Group is hosting three events in England, Scotland and Wales to raise awareness of rare disorders and the impact that they have on patients’ lives among the media, decisions makers, health professionals and the general public.
This year we were contacted by the media. Director Liz Glenister was interviewed in a BBC West Midlands radio show along with Dr Nick Shaw, HPTH patient Sonia Williams and our Admin Officer, Caina Cuthbertson. We were also invited to appear in the Woman's Own magazine and member Sue Baskett bravely stepped up to be interviewed about her own HPTH experiences.
Our second year - we sent out posters to all our members, our advisors and related organisations. We were also contacted by health centres and endocrine departments who were kind enough to choose to highlight Hypoparathyroidism on their display boards.
The first World Hypoparathyroidism Awareness Day was held on January 5th 2007. This date was originally chosen as HPTH World Awareness Day because it was on that day, in 1994, that a 6 year old girl in Iceland, became the first child in the world to be treated with replacement parathyroid hormone (PTH) - our missing hormone.In the UK we marked the day by getting it listed on the NHS Health Events calendar and having a poster designed which was sent out to members as part of a fundraising drive. In August of this year, we appeared in the Daily Mail as part of an article on hormonal conditions where HPTH UK member Jill Dewsbury kindly shared her experiences.
The Hypoparathyroidism UK website were honoured to be among the first to be selected by the Wellcome Library for inclusion in their Health & Medicine UK Web Archive where it will be kept for preservation. We opted not to include the forum to preserve our members' privacy.
HPTH UK launch
We were delighted to launch Hypoparathyroidism UK on July 15th 2005. On this date the website and online forum went live, along with sister group Thyroid Cancer Support UK.