Find Hypopara Organisations Around the World
Hypopara UK is proud to be of a growing family of hypopara organisations and to have been involved in setting some of them up as well.
We now have a WORLD HYPOPARA AWARENESS DAY website where you can link to the websites of hypopara organisations around the world. Click here
We also provide a list below. Click on the organisation's name to visit their website for further information. This page is growing - please contact us to be added to this page and the World website.
Country Organisation President
UK Hypopara UK Liz Glenister
USA Hypoparathyroidism Association James Sanders
Scandinavia Nordic Hypopara Organisation Helen Dahl-Hansen
Danish Hypopara Association Vibeke Ingebrigtsen
Swedish Hypopara Association Agneta Björnryd
Germany Insensu Frauke Sieger
Netzwerk Hypopara Germany Dieter Krogh
France Hypoparathyroidisme France Natalie Grosset Holenka
Italy Italian Association for Patients
Australia Hypoparathyroidism Australia Shelley Turner
Hypopara Facebook Groups and Pages
Hypopara UK was the first hypopara organisation to appear on facebook back in 2008 and we were thrilled when others began to join us, raising awareness and providing much needed support all around the world. Today, Facebook is the most common way for newly diagnosed patients to find a support group and we use Facebook pages and their accompanying support groups both to raise awareness and as the first step in building a new patient organisation.
Here are all the pages and groups currently operating on facebook but not yet a formal organisation.....watch this space!
Brazil Associação Brasileira de HipoPARAtireoidismo
HipoPARAtireoidismo Brasil Juliana Pera
Chile Hipoparatiroidismo-Chile Luciana Cabral
Argentina Hipoparatiroidismo - Argentina
New Zealand Hypoparathyroidism New Zealand Sallie Hobbs
Kingdom of Bahrain Hypopara Bahrain Hassan Fadhul
Spain Hipoparatiroidismo Espagna Aranxta Saez Sanchez
HPTH Yahoo Group
Hypopara groups associated with Thyroid Cancer Organisations:
France Association Vivre Sans Thyroide Beate Barthes
Germany Bundesverband Schilddrusenkrebs Dieter Krogh
Thyroid Cancer Alliance
Thyroid Cancer Alliance is a global network of thyroid cancer organisations. Hypopara UK is a founding member. Read more here