Hypopara UK is proud to  be of a growing family of hypopara organisations and to have been involved in setting some of them up as well.

We now have a WORLD HYPOPARA AWARENESS DAY website where you can link to the websites of hypopara organisations around the world. Click here

We also provide a list below. Click on the organisation's name to visit their website for further information. This page is growing - please contact us to be added to this page and the World website.

 

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Country           Organisation                                          President

 

UK                    Hypopara UK                                     Liz Glenister

Republic of
Ireland                                                                     Blaithin O'Donnell

 

USA                  Hypoparathyroidism Association         James Sanders

 

Scandinavia        Nordic Hypopara Organisation            Helen Dahl-Hansen  

                                                                                                

                        Danish Hypopara Association           Vibeke Ingebrigtsen 

                         

                        Swedish Hypopara Association         Agneta Björnryd  

                                                                                                 

Germany            Insensu                                         Frauke Sieger

                       

                        Netzwerk Hypopara Germany           Dieter Krogh
                                                                             Claudia Josewski
                                                                             Brigitte Leibig                                                                                                    

 

France               Hypoparathyroidisme France            Natalie Grosset Holenka

                                                                           

 

Italy                 Italian Association for Patients
                       with Hypoparathyroidism (APPI)         Cristina Galligani

 

Australia            Hypoparathyroidism Australia            Shelley Turner

 

 

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Hypopara Facebook Groups and Pages

 

Hypopara UK was the first hypopara organisation to appear on facebook back in 2008 and we were thrilled when others began to join us, raising awareness and providing much needed support all around the world. Today, Facebook is the most common way for newly diagnosed patients to find a support group and we use Facebook pages and their accompanying support groups both to raise awareness and as the first step in building a new patient organisation.  

Here are all the pages and groups currently operating on facebook but not yet a formal organisation.....watch this space!

 

Brazil               Associação Brasileira de HipoPARAtireoidismo
                       (ABRAHIP) page

                       HipoPARAtireoidismo Brasil                       Juliana Pera

 

Chile                  Hipoparatiroidismo-Chile                        Luciana Cabral

 

Argentina            Hipoparatiroidismo - Argentina                    

 

New Zealand          Hypoparathyroidism New Zealand            Sallie Hobbs

 

Kingdom of Bahrain        Hypopara Bahrain                          Hassan Fadhul

 

Spain                   Hipoparatiroidismo Espagna           Aranxta Saez Sanchez

 

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HPTH Yahoo Group
An excellent online forum on Hypopara run by former London pharmacist.  Please follow the link and then enter hpth to join.

 

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 Hypopara groups associated with Thyroid Cancer Organisations:

 

France                Association Vivre Sans Thyroide           Beate Barthes

 

Germany              Bundesverband Schilddrusenkrebs        Dieter Krogh

 

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Thyroid Cancer Alliance

Thyroid Cancer Alliance is a global network of thyroid cancer organisations. Hypopara UK is a founding member. Read more here