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Patient Stories & Case Studies

Hypopara UK has over 1500 members and many are willing to participate in clinical trials and studies. Please get in touch if you are interested in making contact with them. 

We  collect  patients' stories to help raise awareness about the difficulties of living with different types of hypoparathyroidism, and hyperparathyroidism. These are the first stories about hypoparathyroidism ever to be published. 

 

Hypoparathyroidism

These stories cover all types of hypoparathyroidism - post surgical, genetic, autoimmune and  idiopathic.

 

Pregnancy and breastfeeding with hypoparathyroidism

The first ever accounts collected from women with hypoparathyroidism about their pregnancy and breast feeding experiences.

 

Vincent's Story

Baby Vincent was 6 weeks old when he was found to have a genetic form of hypoparathyroidism caused by a calcium receptor mutation of which there are over 300 types. Vincent's type is the second only reported case in the world.


   
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